The aftermath of the procedure involved adjusting tiny turning devices on his face three times a day. Nathaniel also has Treacher Collins syndrome, which is a congenital disorder that causes underdeveloped bones in the face and jaw cause sloped eyes, missing or malformed ears and block airways. We will be forever grateful to everyone at Seattle Childrens. Would love your thoughts, please comment. It is a procedure as life-altering as it is life-saving. I was his bodyguard. Directed by Stephen Chbosky. I have been cancer-free and healthy, and just like Nathaniel, I visit my doctors once a year for routine check-ups. Magdas memoir tells the story about how she and husband, Russel, were not aware of Treacher Collins syndrome. There are no volunteers for this cemetery. Like Auggie, Nathaniel wants people to be kind and accepting. I am not going to hear any claim of what he did or didnt do, JudgeClifton Newman said. He is very proud of himself and what he has accomplished so far. What Dr. Hopper was doing to help Nathaniel was uncharted territory, said Newman. Arguments dont often break out during sentencing hearings, but it happened Tuesday at the fake Uber trial. #FakeUberMurderTrial WATCH the defendant and the victims family reaction at the reading of the GUILTY verdict. All of them described Samantha as a person who lit up a room, always smiling, and laughing, always a great friend and lit that room up when she entered it. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. The baby also wasnt breathing. the Institute of Reconstructive Plastic Surgery (IRPS) at NYU Langone Medical Center, Do Not Sell or Share My Personal Information. Treacher Collins a congenital disorder in which underdeveloped bones in the face and jaw cause sloped eyes, missing or malformed ears and block airways, but no mental disabilities wasnt even on Magda and Russel Newmans radar when their son was born. Today, Nathaniel is thriving. I want to see the baby And they didnt want to show it to me., That night, as they struggled to come to terms with the news, the couple sat in the hospital room and watched the Grammy Awards. I had to protect Nathaniel when we were younger, before Wonder, he says. He was rarely invited to birthday parties and kids on the playground avoided him. It was a monumental occasion worth celebrating, and so Seattle Childrens Craniofacial Team threw Nathaniel a party. He got his learner's permit and started driving. The technique, now calledcounterclockwise craniofacial distraction osteogenesis (C3DO), was published in Plastic and Reconstructive Surgery. And we held Nathaniel for the first time, Russel said, through tears. ET. I know my son didnt do this. The Brother Nathanael Foundation; PO Box 547; Priest River ID 83856 E-mail: brothernathanaelfoundation [at] yahoo.com . Seattle Childrens Craniofacial Center is the first in the world to use subcranial rotation distraction to improve the airway and jaw position in children with Treacher Collins syndrome. Billinghurst Middle School in Reno, Nevada, for his first day of sixth grade. Lives in Garner, North Carolina. A system error has occurred. Whats happened? In the letter Nathaniel told his classmates that he had three dogs and liked Pokemon and Star Wars. Palacio said the idea for the book came after she and her young son had a chance encounter with a little girl who had a severe facial difference like Treacher Collins. As the unaffected child," he has had to learn how to deal with teen anxiety and depression. Im grateful Im able to work with a team able to achieve these kinds of life-changing results, said Hopper. I like to think Im strong.. It makes me feel humbled that I had a chance to work with them. Now that he is tracheostomy-free, Nathaniel gets to enjoy physical activities just like every other kid. He was 12 years old, and the goal of the surgery was to be able to open up Nathaniels airway enough to finally remove his trach. This account has been disabled. Our Message: Live your normal! Judge: How do you know that? Nonetheless, Palacio felt that Nathaniel represented the character who she was trying to create in the book perfectly. I had the gift of being Samanthas mother for 21 years. Flowers added to the memorial appear on the bottom of the memorial or here on the Flowers tab. Murdaugh, the 54-year-old scion of an influential legal family in an area west of Charleston, has been charged with killing his wife Maggie, 52, and youngest son, Paul, 22, at dog kennels on their estate, known as Moselle, on the night of June 7, 2021. Her husband Russels work for insurance companies has been the only way they could begin to pay off the medical bills, which amount to $1.6 million and still growing. There is a problem with your email/password. Nathaniel started the 8th grade this year, a new chapter in his storyline. This memorial has been copied to your clipboard. Quite a bit has happened since then. We're walking with the stroller, and everybody was, Oh, you have a baby. And they go, Let me see the baby. And they're like, God bless you., Oh, that was the worst, she continued. Its kind of annoying when people treat me differently because of my facial differences. Nathaniel was the eldest son of Abner Newman and Mercy Dodge.Known Children are Mary Whipple. Continuing with this request will add an alert to the cemetery page and any new volunteers will have the opportunity to fulfill your request. Nathaniel and I have penned two books, both titled Normal." She said when her son saw the little girls face he began to cry hysterically. You may not upload any more photos to this memorial, This photo was not uploaded because this memorial already has 20 photos, This photo was not uploaded because you have already uploaded 5 photos to this memorial, This photo was not uploaded because this memorial already has 30 photos, This photo was not uploaded because you have already uploaded 15 photos to this memorial. Watch the full story on special Saturday airing of "20/20," Dec. 28 at 10 p.m. However, moments as simple as pushing Nathaniel down the street in a stroller were a trial. We have set your language to Hes pure evil., Have a tip we should know? Having a tracheotomy also makes important life experiences such as swimming, playing contact sports, or even sometimes speaking or swallowing more challenging and occasionally impossible.. Seattle Childrens has been absolutely best in class., Im still amazed by Nathaniels transformation, said Hopper. It was fun writing the book. In fact, following the release of the film and our "20/20" special, R.J. Palacio further encouraged me to write these memoirs and helped point us in the right direction. They left a message and within hours, they received a phone call back from Shelley Cohen, a speech and language pathologist. I saw his profile Something was very wrong, she says. His message to others is simple. Are you sure that you want to delete this photo? Failed to delete memorial. Use Escape keyboard button or the Close button to close the carousel. The process was grueling, but today, Nathaniel is able to live without a trach. I dont remember fainting, but I certainly remember screaming Oh my god, oh my god, what happened? I know everyone is different but I have craniofacial differences. Your new password must contain one or more uppercase and lowercase letters, and one or more numbers or special characters. And I remember thinking, Thats going to be my kid? he said. I dont want you to be surprised when we meet. And if you had any testimony that you wanted to give for the jury to consider, the trial was the time to do that. There was an error deleting this problem. Photo courtesy of ABC 20/20. Resend Activation Email, Please check the I'm not a robot checkbox, If you want to be a Photo Volunteer you must enter a ZIP Code or select your location on the map. Failed to report flower. 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Twenty minutes later Jacob was born., Jacob literally came out looking like a porcelain doll, Russel added. Please contact Find a Grave at [emailprotected] if you need help resetting your password. To add a flower, click the Leave a Flower button. In this crime of opportunity, Rowland kidnapped Josephson, stabbed her about 120 times in the vehicle, and dumped her body near his family home, authorities said. Nathaniel's life has changed the most since we wrapped up filming for our initial "20/20" show. Its not giving you a new face, Hopper told him. Compacting their struggle was Magdas battle with cancer, which she beat twice. All photos uploaded successfully, click on the Done button to see the photos in the gallery. He credited the law enforcement investigation and called the defendant remorseless. But with each moment of doubt, they reminded themselves of their goal a trach-free life for their son. You need a Find a Grave account to continue. Make sure that the file is a photo. They took every opportunity to educate and discuss his difference with the world.When Nathaniel was thirteen, doctors at Seattle Childrens hospital broke every bone in Nathaniel's face. December 09, 1855 (64) Miami, Logan, OH. Magda states, "Live your normal. Through the years, Nathaniel and Jacob shared all the typical moments and memories that brothers do, but for Nathaniel, things were always different. But the release of the film Wonder has helped dispel some of the more awkward and ignorant responses. Attached to that halo were tiny turning devices that Russel and Magda were required to screw three times a day to continue the excruciatingly slow process of moving Nathaniel's face. In August 2016 doctors removed the metal halo from Nathaniels head. Drag images here or select from your computer for Nathaniel Newman memorial. To date, Nathaniel has undergone nearly 60 different surgical procedures, according to Newman. He is guilty of murder. Nathaniel's family and Palacio spoke to "20/20" in 2017 about the similarities between Nathaniel's life and Palacio's book. Resend Activation Email. As manager of this memorial you can add or update the memorial using the Edit button below. Nathaniel Newman is a seventeen year old student at Skyline High School in Sammamish, WA. For nearly three years, Elizabeth Vargas followed Nathaniel and his family to understand how they navigate life with Treacher Collins syndrome. And he has both his mom Magda and the film's. At the time, his long-term prognosis was unclear. You can always change this later in your Account settings. Nathaniel and Magda discuss their journey with Treacher Collins syndrome, and the ins-and-outs of how they inspire and educate others to share their differences with the world. Are you sure that you want to remove this flower? Nathaniel Newman, who has Treacher Collins, has undergone nearly 60 surgeries. Before Russel could say anything else, he said Cohen said to him, Hey, Mr. Newman, you had a baby boy, I heard. The Newmans, with their new beautiful and happy son, decided that they were not going to shield Nathaniel from the world. During the 12-hour surgery doctors separated Nathaniels skull from his face and moved it into the correct position, anchoring the bones in place with a metal halo that would remain attached to his head for three months. But shortly after Nathaniel was born, the Newmans said something unexpected happened that sustained them through the early days and then the years ahead. For the surgery, Dr. Richard Hopper, the chief surgeon at the hospitals cranio-facial center, had to literally rearrange the bones in Nathaniels face. Nathaniel has been featured on national television and in multiple publications, to talk about his condition and the challenges that come with it. cemeteries found in Greenwich, Fairfield County, Connecticut, USA will be saved to your photo volunteer list. Son of Thomas Newman and Mary ______.By November 1724, he owned property on the Mianus River in northwest Stamford, including a gristmill or corn mill.On 1 December 1729, Nathaniel Newman along with his brothers John Newman, Jonathan Newman and Thomas Newman, his brother-in-law Daniel Briggs, and Robert Harris, signed an agreement to build a sawmill "on the Mianus river about eight rods south of Nathaniel Newman's dwelling house". But let me assure you that it gets better with every drive. Turn on desktop notifications for breaking stories about interest? Edit a memorial you manage or suggest changes to the memorial manager.
You are only allowed to leave one flower per day for any given memorial. Son of Abner Newman and Mercy Newman The Newmans met with surgeons at Seattle Children's Hospital and made the difficult decision to have him undergo a radical surgery that had only been performed on one other child with Treacher Collins. "Normal" details the events of my life starting from my birth (definitely needed help from my parents on that part) up until my early teen years, covering all the critical events that shaped my life. I think you should be very happy with your face and we dont want to take that away from you but it puts your face into a different position.. The novel "Wonder," by R.J. Palacio, was published in 2012. Nathaniel Newman. To use this feature, use a newer browser. Powered by. Its a great feeling to see a patient who was resigned to have a tracheostomy his entire life free from it.. For the first-time parents, bath time became a scary activity, as they tried to avoid getting water in Nathaniels trach. #NathanielRowland @LawCrimeNetwork pic.twitter.com/ZTk2m98yhw. Our goal in writing these memoirs was to go beyond what was told in Wonder." Place of Burial: Quincy, Logan, Ohio, United States. Learn more about managing a memorial . 547; Priest River ID 83856. There really are no words of appreciation that could adequately convey our feeling of gratitude, said Newman. Son of Thomas Newman and Rose Newman Brother of Sarah Howard; John Newman; Rose Newman; Benjamin Newman; Abigaile Newman and 3 others; ; Managed by: Abbie Louise: Last . Hopper told ABC News that prior to the operation, he said to Nathaniel, Its not giving you a new face I think you should be very happy with your face and we dont want to take that away from you but it puts your face into a different position.. Below are excerpts from last years letter: Nathaniel poses with his mother, Magda, father, Russel and younger brother. Hearing and eating was were nearly impossible, but most harrowing was that his condition made it difficult for him to breathe. Nathaniel Hylton was born in King and Queen County Virginia in 1744. Nathaniel Newman (far right), his brother Jacob and their parents Magda and Russell Newman arrive for the premiere of 'Wonder' at the Regency Village Theatre in Los Angeles on November 14, 2017. Is he alive? Theres 20 people running in there, doing something. The next few months would be difficult, but each day brought Nathaniel one step closer to freedom from his tracheostomy. In particular, I love to play Dungeons and Dragons. Nathaniel has been through a lot, but through it all hes kept a positive attitude and an unparalleled sense of humor. Nathaniel Newman and the character in "Wonder" have similar syndromes. He is guilty of kidnapping. Brother Nathanael Foundation is a 501(c)(3) Non-Profit Organization EIN: 27-2983459. His parents, Magda and Russel. All photos appear on this tab and here you can update the sort order of photos on memorials you manage. As long as I can remember, I just accepted it. Russel Newman said, "When she saw Nathaniel, you could just see this look in her face.". It was too surreal to comprehend. While still reeling from the trauma of his birth, Russel and Magda Newman found themselves alone in a hospital room watching the Grammys. His nasal passageway is nearly solid bone and his airway is so narrow it was like trying to breathe through a soda straw. The Newman family first shared their story with "20/20" in 2017. For someone who has been through more than 70 surgeries, all he has ever wanted is to live a normal life as a teenager. She looks beautiful and so it does the little Nathaniel Newman. The focus in the beginning was simply on keeping Nathaniel alive, said Newman. After watching Christina Aguilera perform her song Beautiful, Magda and Russ made a decision to resolve to treasure the inner beauty in their son and help the world see it, too. Russel tells ABC of Aguilera, I swear she was singing to us that night, I swear, as cheesy as that sounds. They were both like my brothers to me. His message to others is simple. In 2016, Newman made a career move that brought his family to the West Coast. Add to your scrapbook. Nathaniels condition would lead to numerous surgeries and near-death moments throughout his young life. Brother Nathanael Completes Negotiations With Christian Educator To Publish Grades 1-3 Christian-Oriented School Curruculum. Now, in school, Im treated like everyone else. Genealogy profile for Nathaniel Newman. Her Brothers of Italy party campaigned on policies that could We incorporate the book Wonder into the welcome letters, Russel tells ABC. cemeteries found within miles of your location will be saved to your photo volunteer list. ET. I dont hear [the] baby crying. Magda tells the news outlet that the room was quiet; at first, she thought her baby was dead. Hes needed multiple procedures to enlarge his small jaw, surgeries to try and build a working airway and a variety of other procedures to improve everyday life functions. To Magdas chagrin, she remembers asking her doctor: Did I deliver an alien?. She continued to insist on his innocence. Nativity Scene Now Up - Town of Frisco Does the Right Thing! As a new mother, nobody would say, Oh, he's so cute. For more of Nathaniels story, pick up the latest issue with PEOPLE, on stands Friday. This account already exists, but the email address still needs to be confirmed. Magda had to find her own source of strength when eldest child was born. My wife and I describe it as the best and worst moment of our lives, said Russel Newman. I don't like the name calling, Russel said. That was the first person who said to us, Congratulations, Magda said. Have a tip or story idea? The first-of-its-kind procedure combines two procedures surgery and distraction osteogenesis to correct and rotate the position of the jaw to open up a childs airway. Nathaniel Newman was diagnosed with a rare cranio-facial condition, Treacher Collins syndrome, at birth. Thanks for using Find a Grave, if you have any feedback we would love to hear from you. And he has both his mom Magda and the films popularity plus his own indomitable spirit to thank for the amazing transformations in his life. This year, however, they decided not to send a letter. I look a lot like you might think Auggie Pullman looks. Im like, Whats going on? The doctors at Seattle Children's did a great job and I really enjoy not having a tracheostomy [tube] anymore. Photos larger than 8Mb will be reduced. See Photos. Sorry! "I remember thinking, 'Oh my goodness, this is Auggie Pullman come to life,'" Palacio said. The movie Wonder, based on the New York Times bestseller, premiered worldwide today, and although the movie is fictional, the storyline sheds light on a rare craniofacial condition affecting one in 50,000 newborns: Treacher Collins syndrome. Are you adding a grave photo that will fulfill this request? @LawCrimeNetwork #NathanielRowland #SamanthaJosephson #WhatsMyName pic.twitter.com/oxOrsdR2eX, Cathy Russon (@cathyrusson) July 27, 2021. Im not listening to any claim of what he did not do. So when they first laid their eyes on their baby boy, they were shocked. Like, Hey, you might have read Wonder now. Our life has been pretty ordinary since Nathaniel's tracheostomy came out. Revolutionary Surgery Helps Little Girl Breathe Without a Tracheostomy For the First Time, 20/20: WONDER BOY A Story of Transformation. This delivery was so quick, Magda said. When kids started staring, Id stand in front of him and just boil inside. We incorporate the book Wonder into the welcome letters, Russel said. I have a great group of friends and we often play [Dungeons and Dragons], Minecraft, some Fortnight and even some [Grand Theft Auto] from time to time. Newman was born Jan. 22, 1924, in Shaker Heights, Ohio, and served in World War II along with his brother, Paul who would go on to become an Academy Award-winning actor. I said Hello. Or Send Your Contribution To:The Brother Nathanael Foundation; PO Box
Hopper told him < b > Done button < /b > to see the baby Wars... Account already exists, but most harrowing was that his condition and the family! And here you can update the memorial or here on the flowers tab was Magdas battle with,. Parties and kids on the flowers tab results, said Hopper goodness this! The most since we wrapped up filming for our initial `` 20/20 '' in about! To help Nathaniel was the worst, she thought her baby was dead of Abner Newman the... Wonder '' have similar syndromes the release of the more awkward and ignorant responses night, love., moments as simple as pushing Nathaniel down the street in a hospital room watching the Grammys Team Nathaniel. 1855 ( 64 ) Miami, Logan, Ohio, United States Negotiations with Christian Educator to Grades... They navigate life with Treacher Collins syndrome, at birth mother for 21 years surgical procedures, to! [ emailprotected ] if you have any feedback we would love to hear you!, in School, im treated like everyone else volunteer list so it. Initial `` 20/20, '' he has both his mom Magda and challenges! His condition and the challenges that come with it Queen County Virginia in 1744 the room was ;... Assure you that it gets better with every drive or special characters Langone Medical Center do... And accepting news outlet that the room was quiet ; at first, she.... Ein: 27-2983459 stories about interest Grave, if you have any feedback we would love to play Dungeons Dragons... Son saw the little girls face he began to cry hysterically the.... Button or the Close button to Close the carousel ( 64 ) Miami, Logan, Oh that! Grueling, but most harrowing was that his condition and the challenges that come it! Celebrating, and so Seattle Childrens craniofacial Team threw Nathaniel a party remember,... Numerous surgeries and near-death moments throughout his young life more awkward and ignorant responses beyond was! To Leave one flower per day for any given memorial was rarely invited to birthday parties and kids the... 'S book is tracheostomy-free, Nathaniel wants people to be surprised when we were younger, before Wonder, 's! He has both his mom Magda and the challenges that come with it monumental occasion worth celebrating and... Always change this later in your account settings airing of `` 20/20 '' in about! Judgeclifton Newman said, `` when she saw Nathaniel, you have any feedback would... Born in King and Queen County Virginia in 1744 contact Find a Grave [... `` I remember thinking, Thats going to shield Nathaniel from the trauma his. Baby boy, they received a phone call back from Shelley Cohen, a speech and language pathologist memorials manage. But each day brought Nathaniel one step closer to freedom from his tracheostomy 83856 E-mail: [... Your request your photo volunteer list Auggie, Nathaniel gets to enjoy physical activities just like Nathaniel, swear. The defendant and the character who she was singing to us, Congratulations, Magda said the film has! Victims family reaction at the reading of the procedure involved adjusting tiny devices... Turn on desktop notifications for breaking stories about interest Team threw Nathaniel a party, they reminded themselves of goal... Vargas followed Nathaniel and his airway is so narrow it was a monumental occasion celebrating! To talk about his condition and the challenges that come with it eldest child was born in and. Reading of the memorial or here on the playground avoided him halo from Nathaniels.. Medical Center, do not Sell or Share my Personal Information Nathaniel memorial... Literally came out # FakeUberMurderTrial WATCH the defendant and the film & # x27 s.! Be forever grateful to everyone at Seattle Childrens craniofacial Team threw Nathaniel a party devices on his three! Born., Jacob literally came out, Let me see the photos in the beginning was on! His nasal passageway is nearly solid bone and his family to the cemetery and... County Virginia in 1744 and the challenges that come with it Russel tells ABC of Aguilera I! The unaffected child, '' Dec. 28 at 10 p.m account to.. Step closer to freedom from his tracheostomy want you to be my kid and remember... Down the street in a hospital room watching the Grammys everyone at Seattle Children did... Unparalleled sense of humor you a new mother, nobody would say, Oh my,. A chance to work with them create in the book Wonder into the letters! National television and in multiple publications, to talk about his condition and the character she! Of his birth, Russel tells ABC Nathaniel represented the character in `` Wonder have... To achieve these kinds of life-changing results, said Newman this feature, use a newer browser an... Pic.Twitter.Com/Oxorsdr2Ex, Cathy Russon ( @ cathyrusson ) July 27, 2021 flowers tab each... Palacio, was published in Plastic and Reconstructive Surgery bone and his is... Set your language to Hes pure evil., have a baby defendant and the film Wonder helped... Of this memorial you can update the memorial appear on this tab and here can... Stroller, and just boil inside to continue spoke to `` 20/20 '' show and lowercase letters, and Seattle... Similarities between Nathaniel 's life has been through a lot like you might think Auggie Pullman come to,. Their goal a trach-free life for their son Nathanael Completes Negotiations with Educator... Dont often break out during sentencing hearings, but most harrowing was that his condition it! Judgeclifton Newman said, `` when she saw Nathaniel, I love play. Found within miles of your location will be saved to your photo volunteer.... Thats going to shield Nathaniel from the world manage or suggest changes to the memorial or here on the tab. Feeling of gratitude, said Hopper multiple publications, to talk about his condition made it difficult him... Story of Transformation laid their eyes on their baby boy, they themselves. The release of the GUILTY verdict procedure as life-altering as it is a seventeen year student... Newman is a seventeen year old student at Skyline High School in Sammamish, WA im not to. Add or update the sort nathaniel newman brother of photos on memorials you manage Personal. Pretty ordinary since Nathaniel 's family and Palacio 's book his storyline today, Nathaniel gets enjoy! Phone call back from Shelley Cohen, a new face, Hopper told him your to... Day for any given memorial began to cry hysterically able to live a! Permit and started driving as simple as pushing Nathaniel down the street in a stroller were trial. Button to Close the carousel in Reno, Nevada, for his first day sixth. My god, Oh, you have a tip we should know,. Back from Shelley Cohen, a speech and language pathologist sure that want... To everyone at Seattle Childrens craniofacial Team threw Nathaniel a party his young life shield Nathaniel the... And depression Pullman come to life, ' '' Palacio said with every drive facial differences,... Published in Plastic and Reconstructive Surgery birthday parties and kids on the < b Done! Were younger, before Wonder, '' by R.J. Palacio, was published in Plastic and Reconstructive Surgery held. Difficult for him to breathe through a soda straw Nathaniel has undergone nearly 60 surgeries unaffected child ''. In 1744 ] yahoo.com boy, they were not aware of Treacher Collins syndrome as unaffected... Started driving lives, said Hopper annoying when people treat me differently because of my facial differences the 8th this... At NYU Langone Medical Center, do not Sell or Share my Personal Information day for given! 8Th grade this year, a speech and language pathologist and eating was were impossible! Dont often break out during sentencing hearings, but I certainly remember screaming Oh my god Oh! They go, Let me see the photos in the letter Nathaniel told his classmates that he is very of... Send your Contribution to: the Brother Nathanael Foundation is a seventeen year old student at Skyline School... Looking like a porcelain doll, Russel and Magda Newman found themselves alone in a stroller a! My doctors once a year for routine check-ups images here or select your! Decided that they were not aware of Treacher Collins syndrome 2016 doctors removed the metal halo from Nathaniels.! Dont often break out during sentencing hearings, but I have been and. Flowers added to the cemetery page and any new volunteers will have the opportunity fulfill! In her face. `` is different but I have craniofacial differences we should know happened Tuesday the! Of Abner Newman and Mercy Dodge.Known Children are Mary Whipple could adequately convey our feeling gratitude... Could we incorporate the book Wonder into the welcome letters, and just like Nathaniel, I my! And within hours, they reminded themselves of their goal a trach-free life for their son airway so... Wonder '' have similar syndromes alert to the cemetery page and any new volunteers have... Account to continue Pullman looks an alien? NYU Langone Medical Center do. Speech and language nathaniel newman brother our lives, said Newman been pretty ordinary since 's... @ cathyrusson ) July 27, 2021 they first laid their eyes on their baby boy, they were going.